Monday, August 30, 2010

Post-Op Care

This is Pia, she traveled from Denmark
to the US for this surgery!
© Pia Christensen
If you've read all the ups and downs with Dr. East you'll know that he said things like, "No one will be able to tell you they've done hundreds of these." Of course he didn't know that I already knew that wasn't true. That's a shame I think. (while there isn't many podiatrist who can say that I did know of one.)

In any event, I really wish Dr. East had handled things a little better with the whole DICOM thing. (It's not a crime to not be familiar with something, but I didn't appreciate being treated as though I was asking for something that didn't exist. And being made to go through so much to get something so standard.) I would have liked to be able to go to him for post-op care.

Call me stupid, but I thought it a great thing for Dr. East to be very amiable. This way he could be the post-op provider and be in contact with Dr. West. Perhaps begin a report with him and maybe, just maybe, end up partnering a bit with him for future patients who live in the east? Who knows where it could have lead. Dr. West could then perhaps offer more personalized post-op care for his patients from the east through Dr. West. Oh well, water under the bridge. And maybe things don't really work that seamless among practitioners anyway. Upward and onward. ;-)

Last night I found someone online who had the one-stage done! This person is identical to me. She has Brachy only on her left and also needed a Bunionectomy. I got to see photos online!

Dr. West has the experience where I don't need to ask him to provide patient referrals I can speak to. They're online blogging their results/progress.

Reading up on this person's experience, I found out the pump was surgically placed. The dose released is automatic, BUT it is set to end (run-out), etc. She didn't seem to have a problem and from her description— she needed it! So perhaps I need to reconsider. **grin**

I was able to see her bunion incision too. And it was exactly as Dr. West had described to me. On the side, towards the bottom! Awesome. Dr. East was going to do this on the top of my foot! I was also able to see the bruising that occurs. Even in the heel area where the donor bone is taken from.

In any case, I am thrilled having found a patient just like me. This week I am going to try and see if I can network to find a doctor here who would be willing to do the post-op care. I'm not willing to give up on that just yet. ;-)

Looking at her results I feel very confident about having both my issues addressed. Her xrays reveal her bunion seems to be about as serious as mine— and her results are beautiful. 
Mine is the third image from the left. (© Pia Christensen - © DNC)

I will say this, I read through her chronological progress. Just reading it made me very restless! As if I could feel all the discomfort/pain she described while having her cast on for 12 weeks. (and might I add she was very high spirited and positive) Reading it line per line, entry after entry.... I wanted it to be over (as she did and many others). I think the realities are that it is difficult to not walk for 12 weeks. Difficult to remain happy as itching & discomfort develops, and tendons wake up several weeks post-op... in a cast! (FYI, her progress photos and detailed progress has been removed online. She had shared it on a site that was not her own. When that site went down her story went with it.)

Skin gets dry and cracks... in the cast. It can cause wounds. Rashes form. Ankle gets weak. One becomes restless. Heel pain forms. The toe in question isn't moved for so long that its painful once you do. It can stay numb too. It also can 'stick' to the toe beside it and cause discomfort and confusion for a patient. Also, within the 12 weeks one will have several casts and it seems sometimes it hardens just right while other times you feel it's 'off' somehow. It can cause a 3-week-discomfort. But as described with having children... all that seems to fade when full healing arrives. They'd all do it over again if they had to... I guess.

I think I need to come up with a game plan to try and make post-op a little less burdensome for me. I will be working with my foot up, but I will be unable to drive. Going up and down a flight of stairs to walk my dog three times a day is going to be a circus I think. If I can't find a doctor here at home for the post-op care it won't be too bad in that out West I'll have family to help me. But if I do find a doctor here, then I will have to bother people for help.


I will be drugged to the hilt first few days and unable to take myself to the bathroom! ;-D

Tootles! Thanks for following! ;-)

Sunday, August 29, 2010

Q & A with Dr. West

© www.shepardinsurance.com
I have a lot on my plate lately, sorry for the delay on this. This is what came out of my consultation with Dr. West. (If you want to refresh your memory of my visit with Dr. East, see the entry Q & A with Dr. East in July)

Dr. West took a look at my feet. Did a little fiddling around and then grabbed his electronic tablet and began to write on it. It seemed to me, I was now "on file". ;-)

"So tell me about your toe. How does it feel? Does it hurt? In what way?"
As I answered I found that one-word answers were not going to do. I felt a bit of pressure as he asked the same questions, but rephrased. As if I was expected to give my woes and be as explicit as possible. Of course this is necessary, he wanted to get accuracy and make sure my profile was complete. And being from out-of-state I'm sure it was all the more important to have correct notation. I think I was just nervous. Too much build up to the event, you know. ;-).

Am I a candidate for the one-stage or the fixator?
"The one-stage, undoubtedly. I've done that surgery on patients who have a larger length defecate that you with success."

Would the foot/leg be numbed or would I be under anesthesia?
"You must be under anesthesia."

Do you use a cadaver bone?
"No! Out of all my cases, I have several hundred under my belt, I have used a cadaver bone twice, it hasn't favored well. I use bone taken directly from my patients. The heel. That area will fill in again with time— totally within 2 years. You will see a small dimple there." (10 month post-op I can tell you there is no dimple.. there is a 3" scar.)

What kind of bunionectomy would you recommend for me? Lapidus or Austin?
"Neither. I prefer a chevron osteotomy. Why? What has your other doctor recommended?"

Well I prefer to hear what a doctor has to say on his own. Not in contrast or comparison to another. I've researched both the Austin and the Lapidus.
"That is too severe for you. In my opinion that procedure is a little dated and overused in the East."

I was told that if I've been dreaming of a straight line that an Austin is the way to achieve that. The Lapidus will provide correction, but there would still be a bit of a bone-bump. I'm also concerned about the re-occurrence of the bunion itself.
"Why would you want your foot to look like this?"
He took by big toe and straightened it to a straight line.

I asked, "What's wrong with that?"

"You want this?" He pointed to the now huge space between my big toe and second toe.

I said, "Well not the space, but wouldn't my other toes be in proper position within some time?"

"No. Surely your 1st metatarsal is shoving them over a bit, but not this whole space. That is not natural. Square shaped feet are not natural. There should be a bit of an angle. You want it to look like this:..." He placed his fingers over my bunion so I could no longer see it. Then straightened my big toe a bit.

I realized he was speaking about bone structure and I was speaking about look. His demonstration is one I've done to myself many times. It's dreamy even. So I understood what he was trying to convey. Most of his answers during the entire consultation where not prideful, but confident. His statement about square feet, well, not sure I agree. I've looked at thousands of feet all my life. I've seen a whole lot of square feet! Even Anita's, the girl from Spain, are square to me. And I mean that as a compliment! But surely God did not create mine that way, even without bunions. So it's all good.

Have you ever done Brachy and bunion surgery on the same person, same foot?
"Yes, quite a bit of them. Pretty natural thing really, because the forth toe being shorter actually causes the other three toes preceding it to shift over."

Is the surgery done strictly by you? Do you have other doctors or assistants that work with you?
His eyebrows shrugged closely together in the center, taken aback a bit, but smiling, he pointed at himself.
"By me. I may have a tech working with me but it's all done by me."

Would I be in a hard or soft cast?
"Hard cast. 12 - 14 weeks. Removed every 3 weeks to make sure all is healing well, then a new one put  back on."

What medication will you be prescribing after surgery?
"Percocet (Oxycodone) and a pain infused pump."
(If this is surgically implanted (pump), I will flat out refuse. NOT DOING THAT.)

Any mandatory medications or nutritional supplements you recommend before surgery.
"No."

I've been taking Echinacea, Calcium, Vitamin D and Glucosamine for two months now. I really want to heal as well and as quickly as possible.
"There is really no evidence on that helping in these circumstances." Of course I do not care and will continue this. I believe they will help. My aim is to be the fastest and best healing person he's ever seen!

Have you ever had surgery on your feet?
"No. I'm too scared.;-)" He was pleasant during our entire time together. Confident, not egotistical. He had a good sense of humor and this came across here in his answer. He laughed a little. But it was delivered with a bit of admiration for those that do undergo surgery.

What about my bunionettes? They are extremely painful for such small things! I have stopped wearing really high heels so I keep my bunion pain under control, but these two little things are so painful, especially when I wear flat closed shoes!
"We can address those." He explained the procedure and options depending what he finds once he is in there. 
"I want to let you know that I have 4 hours in which to work. Actually, less than that. The anesthesia is for 4 hours. That is really the most for this type of foot surgery. The safest. My priorities will be as follows, 1. your fourth metatarsal (brachy), 2. Your bunion, and 3rd, if there is time, the bunionette." (God I am so praying he has time! They are so painful and I don't live around the corner!)

Doing the one-stage for my Brachy, can I expect the fourth metatarsal to be identical in length as on my normal right foot?
"Ye-es." The he looked at both feet again.
"Um, it would be amazingly close. It is possible that it might be 1 to 2 millimeters shorter. But that wouldn't be because of the bone we are extending, it would be because the toe itself is actually shorter than the normal one on your right foot. Most Brachy patients don't realize that this condition is sometimes caused by both, the shortening of the bone within the foot and within the toe itself. 

I have gone back in with some patients and done a tiny implant to extend the toe itself. It's no big deal really."

But that is considered a whole separate surgery is it not? With insurance.
"Yes."

Cost. What is the cost of these surgeries?
"I don't know. You'll have to speak with so-n-so (financial person in his office) about that. Call him up, he will be happy to work with you on all that."

The incision for the chevron osteotomy, where is it?
"I do the incision on the side of the bunion, a bit more towards the bottom."

Functionality. When I grip all of my toes on my left foot, even my short 4th toe grips very well. I demonstrated. What will this be like afterwards? Will I lose this?
"I'm afraid you will lose most of that."

What are the top three complications with Brachy surgery?
"Patient compliance". ;o) He gave a really big grin. 
He skid right past this one. Not sure if it was intentional on his part, but he did. I was speaking about the procedure on his end, not post-op really.

He explained that patients get really restless and want things to go quicker than they do. He is constantly dealing with morale and trying to keep his patients on a positive thread. He said being in a cast that long is difficult for people. This causes them to not follow direction, etc.

This was said in honesty and wrapped in humor. And because he had asked my three times already, "Anymore questions?" and I said "Yes" and continued to plow through, I decided to not restate this question.

Other things that came up during the consultation...

I don't really plan on wearing high heals after my complete healing.
"You should! It actually helps give the proper range of mobility. Actually I'll tell you, when I do the second foot on most patients... when they are under anesthesia I actually take the big toe from the first surgery and crank it all the way forward! To give it a complete range of motion I know it's not getting. ;-)"

It was nice to hear the honesty. And great to know because I will now be trying to not keep my foot perfectly flat all the time post surgery. I now intend on doing my own bit of therapy even while sutchers are in if I can. I still don't plan on wearing rigidly stiff shoes that will rub against my bunion

Ironically, I bought an amazingly high shoe while out west. BUT it's a wedge heal (better support) AND the shoe is actually soft fabric! It's fleece material and conforms to any shape! So there is NO pressure on my bunions! YAY! This sort of shoe I think would help greatly in my recovery. It would provide the 'bend' Dr. West spoke about while applying no pressure.


I noticed that Dr. West was more surprised by the calluses under my left foot than I thought he would be. I just assumed he'd  seen worse cases, but his reaction was one of surprise. He used the word "wow" along with his reaction. ;-) I did not mind because he immediately went into notation on his electronic pad.

Lastly, I forget how it came up, but Dr. West spoke about a study that is soon to be released. It's based on his cases. About 200 of them. This would be the largest study thus far of it's kind.

I am very interested to see what it reveals!

Tootles! ;-) 


=====

UPDATE, about 2 weeks after this post I found a local post-op doctor. Solidifying my choice of Dr. West for my surgery.

Wednesday, August 4, 2010

Finally! DICOM images with Viewer. ;o)


I emailed the Rep yesterday from TigerView™ and asked if he has spoken to Dr. East. He said "No". He called twice and emailed once.


I then called Dr. East's office and gave them the Rep's name and number again.


Today I received an email from the Rep stating that the files were all set at Dr. East's office. He was able to work remotely through his computer to a PC in Dr. East's office and got it done himself.


The receptionist gave him access. (I'm sure this was done with Dr. East's permission.) But they had no CD to burn my xrays on.I would have to bring them one.

I went in with a CD today and had them burn the files for me WITH the Viewer. YAY!!!  (Incidentally, I saw Dr. East as I was waiting for the receptionist to burn the CD and he said nothing to me. I said "Hello Dr. East" and he smiled briefly.) He hates me now I'm sure. ;-(

I tested the CD on a PC and VOILA! I sent the files to Dr. West immediately. Now he will be able to measure and know exactly what we are dealing with when I see him soon. I'm curious to know if Dr. West feels I am a candidate for the one-stage surgery! I'm excited!!! 


Tootles!

Thanks for following! ;-)

Tuesday, August 3, 2010

Sometimes You Have to Take the Bull by the Horns ;-)

© www.freewebs.com - © DNC
OK. So I got myself to a PC and popped in the CD given to me by the hospital where I got my mammogram done. It was very easy to go in, get the image to display via the Dicom Viewer, and use the tools to make measurements. So at least I have proof of what I suspected and am asking for from Dr. East.

Wait to you hear the latest. ;-)

After figuring to leave things as they were, (accepting that Dr. East truly knows nothing about DICOM)... it really bothered me to then hear that the program he has, TigerView, can actually output what I'm asking for.

So I went onto the TigerView website and submitted an inquiry in their contact page. Asking for the steps on how to produce DICOM images from their software. Someone emailed me back right away, asking me for personal info to better help me. The info they wanted was based on them thinking I was a customer who had the program. I replied with a simple reason why I was asking and my phone number.

A day later I was called by a Rep from TigerView who asked me what I needed exactly. He understood and asked for Dr. East's name and location. He then seemed to be able to pull up Dr. East's account. He told me that he would "activate the module" needed free-of-charge so that this request could be facilitated for me. YAY!!! (This leads me to believe that Dr. East, in order to be able to provide any further request of this kind for his patients, would have to pay for the use of this particular module.... what an education I'm getting ;o)

The Rep said he would be contacting Dr. East to walk him through it.

I thanked him greatly and told him that I in no way wanted to upset Dr. East, but really needed this. The Rep called Dr. East and left a message on Friday. No response. I then gave him Dr. East's email address because Dr. East seems to answer very quickly via his Blackberry. An email was sent out on Monday to Dr. East stating the reason for the contact and I was CCd. It's now Tuesday. Let's see if Dr. East truly meant it when he said he really wanted to get me what I needed.

Tootles! ;-)